Waiting for Sleep Study

By Greenhouse Guru

1 min read

I have had daytime sleepiness for at least 6 months and it seemed to come on quickly. The other day, after 8 hours of sleep, I slept a total of 20 hours off and on. I went back to bed at 8:30 and slept about 5 hours. I would just like a great 8 hours of sleep and be awake all day. This started after being diagnosed with RA. I can't wait for a sleep study next week. A home study said I stopped breathing every 5 minutes so I guess I am not sleeping at all.

Did anyone else experience daytime sleepiness before your sleep study?

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Lori.Foster Community Admin
Hi <inline-mention username="Greenhouse Guru" user-id="4143798"/>. It has been quite a while since you posted, so I thought I would check in and see how things are going. Here is an article from our sister community for people with RA that I thought might interest you: <a href='https://rheumatoidarthritis.net/symptoms/lung-diseases-and-conditions' target='_blank' rel='noopener noreferrer ugc'>https://rheumatoidarthritis.net/symptoms/lung-diseases-and-conditions</a>. If you have not joined that community already, you might want to give it a try. It is super active and you will find lots of support there. Wishing you the best. - Lori (Team Member)
Janet Plank Moderator
Hi Greenhouse Guru, It's been a couple of months since you posted about your daytime sleepiness, RA, etc. How are you doing? Are you able to sleep longer hours or your 8 hours at night, then to stay awake during the day? You were expecting a sleep study the following week. Is your RA affecting sleep as well? Janet (<a href='http://sleepapnea.sleep-disorders.net' target='_blank'>sleepapnea.sleep-disorders.net</a>)
1. Tamara K Sellman Moderator
 <inline-mention username="Greenhouse Guru" user-id="4143798"/> I hope the lung testing goes smoothly and they can solve the other mysteries so you can get busy treating your issues! It can be such a long haul until you can get clarity, but I'm glad to see they have at least ruled out heart issues, that's a big one! Hang in there and keep us posted, we're pulling for you! Tamara, community advocate
2. Janet Plank Moderator
 @Greenhouse Guru It's good that you were tested. I hope that your testing went well. Did you get the results from the testing of your lungs? It's great that your cardiac catherization and heart were good. When the testing is behind you, you will finally be able to use your C-Pap. Hoping that makes a difference for you. Please keep us posted and let us know how the rest of your tests turned out. Know that we are here for you. Janet (<a href='http://sleepapnea.sleep-disorders.net' target='_blank'>sleepapnea.sleep-disorders.net</a>)
Matt Gentry Member
Hello there, <inline-mention username="Greenhouse Guru" user-id="4143798"/> - I'm very happy and excited for you. How did your "Sleep Study" go? 😀 From my experience, there's a big difference between "sleep", and *quality* "sleep". I can totally relate to you. It was awful. No matter how long I would try to sleep, I continued to feel horrible. Please keep us posted on your journey. If you need help or have any questions, please feel free to reach out. Warmly, Matt

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